How has this year been till now,
Wow, it's been a wow year.
There has been drama, Life loss, Racism, Fascism, Homophobia, Transphobia, Corruption, and the list goes on.
But I will be talking about something personal.
For me this year has been about many things. I started the year with trails for a football tournament. Yes it was an amateur league, but getting back into football got me really excited.
Lameeyas birthday was awesome, and she was happy.
I played the league as a Goalie for The Lalit team. Yes, I got to make super saves, but we didn't win the league. However, I did get the Golden glove (Yay). However as my luck would have it, I played two matches with a fever, and couldn't do the last match because I had been diagnosed with Typhoid. (It was a wrong diagnosis, what I had was much worse)
We went to a good doctor, he said it could also be tuberculosis, and I should have a CT scan done.
To those who don't know, the CT Scan hurt like a lot, I could be heard screaming on the outside. Post the CT scan, I had to get a fine needle aspiration done so that they could test my fluid for tuberculosis. This process is a bit like a biopsy, only without the gun. I got my medication for TB, and I was happy that there was finally a diagnosis. Medication will start, and I will be fine. This started March Beginning.
Meanwhile in the world Coronavirus, also known as covid-19 was spreading fast. India went into complete lockdown, nobody was allowed outside, unless its an emergency. We had to go to the hospital for check ups. I saw deserted roads and the street dogs sleeping on roads. Pollution was much less. But my industry where I work was hit the hardest. Either way, I was still not going to be allowed outside.
My blood reports showed that my liver was getting affected badly, so we went to a gastro doctor at aiims. He stopped some medications and put injectibles in me for 2 weeks. I got dizzy in his office when he said that because I am highly phobic to injections and other needles.
So two weeks of injection in my butt, and my liver was clear.
After that the doctors got me admitted for more testing since the medication wasn't working. This happened on May end.
The hospital was amazing, AIIMS really does have all the equipment. I had a battery of tests done on me, that included 2 biopsies, one in the chest lymph node, one in my abdomen. I also had a PET scan, which wasn't that painful. Or painful at all in general. After all this, they finally determined that I have Multi Drug-Resistant TB. The positive was, all the hospital nights, I had Lameeya. I was really missing her.
My medication was changed, and in June we started with the Miracle drug known as Bedaquilin. A super expensive medication is only available with the government. 180 tablets cost 1.5 Lakh rupees.
The government Tb program is amazing and ensures all these medications are available to tb patients free of cost. There is a class difference though, as most of the lower caste people have to visit every day for their medication, but I got it for 20 days, before going to refill and I didn't even need to visit.
I've been working on getting better, but due to a horrible appetite and even worsening mental health, there used to be massive tantrums while eating meals. My mother was patient, but after a few months, she started force-feeding me.
I did not like that at all, that I was not allowed to eat on my own. Even if I was behaving the way I did. So in August, I got admitted to the hospital again because my calcium was too high, and my kidney was acting strange. In the hospital, they put an IV from day one, and I had to take saline. I tried to eat, but all the needles made me nauseated. My water drinking did increase though, however, it also caused swelling on my feet because they forgot to stop saline due to the increase in my drinking water.
They did do another fine needle aspiration, (Two pricks in two areas) and a PET scan.
They let me leave for my birthday and discharged me 2 days later. since my parameters were better.
For my birthday, My brother made food I didn't want to eat. So I enjoyed small snacks. But, my lovely friends were here. They didn't leave my side, to go do their business, and I really started enjoying when Akriti and Jyotsna came in. My pictures with them are the happiest memories. Lameeya gave me a shower of gifts because she is an idiot. But my parents and family members were mostly partying on their own, while I was lying in the bed the whole day.
I didn't feel very special this birthday, but again, Lams, Ang, Jyotsna, and Abhinav made it so much better.
Moving forward to September when I couldn't take the force-feeding anymore. I told Lameeya I'm coming home and needed her help. Lameeya, helped me out of the house, and back home with the babies and her.
There was some unpleasantness that I was leaving, but they will get over it.
I climbed 5 floors and was finally back home with Lameeya. Life was to move forward, but my appetite went down with a fever that hit me. It was the climate that gave an external infection, so had to take antibiotics for that too.
I am eating better now, and with the help of Lameeya, I am getting better. So what if I've completely cut off from my biological parents and relatives.
My family here is supporting me. Also, I look like a living skeleton.
Covid is still around, people are still working from home, and we are on second wave.
Black lives matter is a strong movement now, and so is caste based violence in india.
all in all 2020 has been bad.
Will keep you all updated if i become a mutant with medications!
happy rest of the year folks.
